Henry's Story- Living independently with Recessive Dystrophic EB

Henry George lives with a rare genetic skin condition, Recessive Dystrophic Epidermolysis Bullosa, (EB). EB causes the skin to become very fragile and tear or blister at the slightest touch.

He shares his personal experience of living with EB, including his daily routine which involves hours of painful bandaging, how he manages his mental health and wellbeing, and how our DEBRA Community Support Team have helped him to live independently.

Our DEBRA Community Support Team have a wide range of skills, knowledge and experience to deliver a variety of support services for the EB community.

For support, please contact the team on 01344 771961 and select option 1 or email [email protected], OR find out more information on our website: bit.ly/3Qjj1LL