Скачать или смотреть Can You Afford a Cure? The Gene Editing Dilemma

Gene editing is revolutionizing medicine. So why isn’t it accessible?

Alta Charo, a leading bioethicist and fellow at The Hastings Center, brings deep insight into the ethical and policy challenges that come with today’s scientific breakthroughs. Some therapies like CRISPR are changing what’s possible, correcting the faulty DNA that causes diseases like sickle cell and offering a one-time, potentially permanent cure. Delivering that cure means complex medical procedures, like chemotherapy and bone marrow transplants, that can take weeks in the hospital and carry serious risks are no longer necessary. But that cuts into the cost of medical models built on long-term drug use, not one and done cures, and you get treatments priced in the millions. Add to that a pharmaceutical model built on long-term drug use, not one-and-done cures, and you get treatments priced in the millions.

This episode unpacks the science behind genome editing and the ethical, economic, and logistical hurdles that keep lifesaving innovation out of reach.

#SickleCell #GeneEditing #Cure #Accessibility #Medicine #YouTube

Chapters:
00:00 – Why Is Gene Editing So Expensive?
00:45 – The One-and-Done Dilemma
02:00 – How Genome Editing Actually Works
03:10 – Delivering the Cure: Why It’s So Complex
05:00 – Real-World Barriers to Access
06:40 – In Vivo Gene Editing: The Future?
07:30 – The True Cost of Innovation
09:20 – Ethics of Inaccessible Cures
11:00 – Can National Health Systems Keep Up?
12:50 – What FDA Approval Really Means
16:00 – Why the FDA Moves Slowly (on Purpose)
19:20 – Understanding Medical Ethics Layers
23:00 – When Personal, Professional & Government Values Collide
26:40 – Community vs. Public Health
29:00 – Be a Mensch: Ethics in Everyday Life
31:00 – Alta’s Bioethics Magic Wand
32:20 – What You Can Do Right Now

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Alta Charo is a leading expert in bioethics and biotechnology policy, and the Warren P. Knowles Professor Emerita of Law and Bioethics at the University of Wisconsin - Madison. She has advised the FDA, NIH, Department of Defense, and World Health Organization on issues ranging from genome editing and gene therapy to vaccine ethics and stem cell policy. A member of the National Academy of Medicine and the American Academy of Arts & Sciences, Charo has shaped national and international standards on medical research and innovation. She continues to consult on emerging technologies in medicine, public health, and environmental applications.

Insoo Hyun, PhD is the Director of the Center for Life Sciences and Public Learning at the Museum of Science, Boston. He received his BA and MA in Philosophy with Honors in Ethics in Society from Stanford University and his PhD in Philosophy from Brown University. Since 2005, Dr. Hyun has been heavily involved with the International Society for Stem Cell Research (ISSCR), helping draft its international research guidelines and serving twice as the chair of the ISSCR Ethics Committee. Dr. Hyun’s research interests go well beyond stem cell ethics and policy to include emerging technologies in the life sciences and new strategies for community engagement in bioengineering.

Vardit Ravitsky, PhD is President and CEO of The Hastings Center, an independent, nonpartisan bioethics research center that is among the most influential bioethics and health policy institutes in the world. She is a part-time Senior Lecturer on Global Health and Social Medicine at Harvard Medical School and past Full Professor at the Bioethics Program, School of Public Health, University of Montreal.

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