Скачать или смотреть Another Actual Conversation with Maggie | Rett Syndrome

My daughter has Rett Syndrome. A loss of speech is a trademark of the disease. She used to be able to say up to 50 words. Now she can only speak with the aid of technology and she's getting better at it.

Doing things that other kids can do are are extraordinarily difficult. for her. Not because she doesn't understand, but because her body doesn't do what she wants it to.

A cure is possible. It is reversible. My daughter can be saved.

Follow our story: magnoliashope.com
Donate here: http://www.rettsyndrome.org/magnolias...

Rett syndrome is a rare genetic postnatal neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake. Cognitive assessment in children with Rett syndrome is complicated, but we know that they understand far more than they can communicate to us, evidenced by their bright and attentive eyes, and their ability to express a wide spectrum of moods and emotions.