The Uncounted: The people left out of health data | Sara (Meg) Davis | TEDxGeneva

Data is increasingly important in planning and decision-making, but data can also be biased and shaped by our assumptions and gaps in knowledge. When this gap-filled data is plugged into algorithms, it can amplify existing forms of discrimination. For example, the global HIV response is being undermined by the fact that many governments deny the existence of the key populations at greatest risk -- gay men and other men who have sex with men, sex workers, drug users, and transgender people. Since no data is gathered about their needs, life-saving services are not funded, and the lack of data reinforces the denial. This creates a data paradox which can warp national health priorities and plans. As Davis explains, stigma, discrimination and inequality are systematically creating invisibility which can keep marginalized, stigmatized groups uncounted and unserved. To break the vicious cycle of this data paradox, we have to change the power relationships that keep some groups hidden and on the margins. Sara (Meg) Davis is a senior researcher at the Global Health Centre, Graduate Institute, Geneva. She is the author of numerous articles and two books, including
The Uncounted: Politics of Data in Global Health (Cambridge 2020).
Davis was born in France and
raised in the U.S. She earned her MA and PhD at the University of Pennsylvania. She has worked for twenty years as a human rights activist and researcher in
collaboration with communities living with and affected by HIV, and was the founder of Asia Catalyst, which has trained hundreds of community-based activists across Asia in human rights research and advocacy. She has worked for Human Rights Watch and for the Global Fund to
Fight AIDS, TB and Malaria, and as a consultant for global civil society networks and UN agencies. In 2017,
she was one of three winners of the International Geneva Award. Davis is currently principal investigator of a multi-country participatory action research project on digital health and human rights. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx