Living with NF2-SWN: the Story of Billy Nguyen, MD

Not only does Billy Nguyen live with NF2-related schwannomatosis (formerly called NF2), he treats patients who live with diseases like his. Billy was diagnosed with neurofibromatosis type 2, or NF2, at just six years old. Despite years of surgeries, chemo, and dealing with hearing loss, he used his journey with NF2 to propel him into a successful career in medicine.

In honor of NF2 Awareness Day on May 22, 2020, the Children’s Tumor Foundation released "Understanding NF2" a short comic book that tells Billy's true story as an NF2 patient. ​You can freely read the comic and learn more about Billy at:
https://www.ctf.org/wp-content/upload...

For closed captioning, click the CC button.

What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.

Visit our website at https://www.ctf.org/
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