Cure VCP Disease Research Podcast - Episode 1

Content Source: Korb, M., Peck, A., Alfano, L.N. et al. Development of a standard of care for patients with valosin-containing protein associated multisystem proteinopathy. Orphanet J Rare Dis 17, 23 (2022). https://doi.org/10.1186/s13023-022-02...

This podcast represents an innovative approach to making complex medical research more accessible to the rare disease community. We want to be fully transparent about our methods and mission:

This podcast is produced using artificial intelligence tools, including NotebookLM for content generation and AI-generated avatars for presentation. All content is based exclusively on peer-reviewed research publications, which are cited in our show notes. We do not generate, modify, or enhance any medical information beyond what is present in these original scientific sources.

Why We Use AI:
As a grassroots organization led by rare disease families, we face unique challenges in creating educational content. Many of us live with physical limitations that make traditional content production challenging. AI tools enable us to:
Transform complex research papers into more digestible, conversational formats
Maintain consistent content production despite our physical limitations
Maximize our limited resources to serve our community better
Reach more people with critical information about rare diseases
Create translations of important research for our international community

Our Commitment:
We believe that responsible AI use can democratize access to medical knowledge and empower rare disease communities. Every episode is carefully reviewed by our team to ensure accuracy and alignment with the original research. While the voices and avatars are AI-generated, the mission, curation, and oversight come from real patients and advocates who understand your journey.

Sources and Verification:
Each episode includes links to the original research papers discussed. We encourage our listeners to refer to these primary sources and discuss any medical information with their healthcare providers before making decisions about their care.

Your Support:
By listening to this podcast, you're participating in an innovative approach to rare disease education and advocacy. We welcome your feedback on how we can better serve our community and make complex medical research more accessible to those who need it most.

Contact:
For questions about our AI tools, sources, or content creation process, please reach out to: [email protected]