Diving Deeper into the New NIH Data Management and Sharing (DMS) Policy

The NIH Office of Science Policy (OSP) and the Office of Extramural Research (OER) invite you to join them for an engaging and interactive webinar focused on the new DMS policy which goes into effect on January 25, 2023. In this second webinar of the series, we will expand upon the information presented in the first webinar and dive deeper into topics including privacy protections for data from human participants and justifiable limitations on sharing data. Don't miss this valuable opportunity to hear policy experts provide the latest information and to get your questions answered.

00:00 Welcome
03:30 Webinar 1 Recap & Policy Overview
07:12 Recent Developments & Resources
09:05 Protecting Privacy When Sharing Data From Human Participants
10:42 Deidentifying Data
13:10 Agreements for Sharing Data
14:54 Certificates of Confidentiality
16:45 Controlled Access Data
19:21 Responsible Management & Sharing of American Indian and Alaska Native Participant Data
23:26 Genomic Data Sharing (GDS) Policy Overview
25:38 Interaction Between DMS and GDS Policies
28:40 Single DMS Plan
30:41 Informed Consent
32:42 Proprietary Considerations & Intellectual Property
36:23 Review of DMS Plans & Proposed Limitations on Sharing
38:31 Timeline for Data Sharing
40:40 Use of Existing Data & Secondary Data Analysis
42:57 Research Activities Subject to DMS Policy
46:11 Live Q&A