Скачать или смотреть Getting a medically complex child up and out...

This video shows the process we go through in getting Raelynn from her bed to the van. (I sped up the video during some of the monotonous parts)

👍🏻 It may feel weird to "like" a video such as this, but it really does help us keep making videos of Raelynn's life with seizures, which helps many parents who are going through similar things.

A few weeks ago, Raelynn was having far more seizures than usual. So we made an appointment with her neurologist to see if there was anything we could do about that.

00:00 Getting in her chair
02:34 First Seizure
06:56 Getting into the Van
08:19 Second Seizure
09:09 Third Seizure
09:26 Good News!

We always need to factor in plenty of extra time when we need to get somewhere with Raelynn. It takes time to get Raelynn comfortable in her wheelchair, and to fix her hair, and to help her through unexpected seizures, of which she had three this particular morning.

Visit Raelynn's website to learn even more! https://sunshinebaby.tv

👇 AND PLEASE SUBSCRIBE if you find this content helpful.
   / @hopeandsunshine  

AFFILIATE LINKS

Fun stuff Raelynn uses:
✔️ Galaxy Projector: https://amzn.to/3yQyR8x
✔️ Towel Warmer: https://amzn.to/3uIQioa
✔️ Travel Pillow: https://amzn.to/3pbsgRv

Must-have medical gadgets/supplies:
✔️ Fingertip Pulse Ox: https://amzn.to/3i92oEr
✔️ Forehead Thermometer: https://amzn.to/2SIQlD3
✔️ Oil Sheets: https://amzn.to/3uGceAk

Helpful accessibility things:
✔️ Wheelchair hook: https://amzn.to/3fFFkve
✔️ Gooseneck Tablet Holder: https://amzn.to/2SPYOEF


▶️ 8 years old:    • Seizure from yesterday & WHY I post Raelyn...  

A few playlists you may find helpful:
⏩ Seizures:    • Raelynn having a seizure (ST Event: 10/1/1...  
⏩ Tobii Dynavox:    • Using the Tobii Eye Gaze with Look to Learn  
⏩ Assistive Equipment:    • RAELYNN CAN STAND! // Using the Jenx Stand...  
⏩ Medical Procedures:    • Assistive Equipment  
⏩ Living Life with Disabilities:    • Living Life with Disabilities  

ABOUT RAELYNN'S YOUTUBE CHANNEL

Raelynn has epileptic encephalopathy, global developmental delay, cerebral palsy, cortical vision impairment, and I could go on and on. In fact, I'll go on a little more. Raelynn is quadriplegic. She has a gastro-jejunal (GJ) tube through which she "eats" all of her food. She has a vagus nerve stimulator (vns), and is currently getting intravenous immunoglobulin (ivig) treatments to hopefully help with her seizures. She regularly wears a shaker vest, uses a nebulizer, and a cough assist machine to help her breath better, especially when she seems extra susceptible to aspirating on her oral secretions.

Raelynn’s been to the doctor more times than the rest of our family combined!

In this whole situation, if we were looking for hope in our circumstances, we honestly wouldn’t find much. Raelynn will probably always be in a wheelchair. She’ll probably always be fed via a food pump. She’ll probably never talk. And she has virtually no chance of getting better.

I can’t tell you how many times people have told me, “God can heal her.” I’ve actually come to find it a little funny when people say that (and I'm a pastor!). I know that God CAN heal her, and I know that God will heal her in eternity, but the point of life is not that we wouldn’t have difficult circumstances.

God is using Raelynn exactly as she is right now. I see how much I’m a better person because of Raelynn. I see the ways God has changed my family, the things He’s taught us, the people He’s put us in connection with, all because of Raelynn’s problems. When I see how much God uses her disabilities, I see that God takes the bad things, the hard things, the hopeless circumstances of our lives and brings beauty, goodness, and hope from them all.

That's what this channel's about.

We post videos of Raelynn's life, seizures, and other disabilities to this channel three days a week (Monday, Wednesday, Friday).

If this sounds like something you could benefit from, please consider subscribing! Your subscription will help us keep making videos of Raelynn's life and assistive technologies! ❤️
   / @hopeandsunshine  

#seizures #livingwithseizures #raelynnseizures

https://sunshinebaby.tv