The NIH All of Us Research Program: Researcher Engagement at UCSF

The All of Us Research Program is an ambitious effort to gather health data from one million or more people living in the United States to accelerate research that may improve health. The program is building a dataset to help transform the future of health research by equipping researchers with expansive health data from diverse populations, especially those underrepresented in biomedical research. More than 6,600 health researchers are leveraging this one-of-a-kind dataset to improve understanding of health and disease, identify opportunities to reduce disparities and enable more precise approaches to care.

Karriem S. Watson, DHSc, MS, MPH, is the Chief Engagement Officer for the NIH All of Us Research Program. Dr. Watson came to the NIH after 16 years in academia and community health. He previously served as the Associate Executive Director of a group of Federally Qualified Health Centers (FQHCs) in Illinois, where he developed a community-engaged and implementation science research program.

Robert A. Hiatt, MD, PhD, is Professor and immediate past Chair of the Department of Epidemiology and Biostatistics at UCSF and the Associate Director for Population Science of the UCSF Helen Diller Family Comprehensive Cancer Center. Currently, he leads the All of Us Precision Health Program at UCSF and directs the San Francisco Cancer Initiative (SF CAN).

The session will be moderated by the UCSF Division of Prevention Science Chief, Jesús Ramírez-Valles, PhD, MPH, Professor of Medicine, and Walter Gray Endowed Chair in HIV/AIDS Science of the AIDS Research Institute.

0:00 Introductions
2:24 What We Hope to Accomplish
7:06 All of Us by the Numbers
9:33 Intersectionality and Social Determinants
12:09 Available Data
22:43 Participant Return of Value
25:19 Researcher Engagement
30:30 Current Protocol
36:30 Investments to Achieve Diversity
37:29 Privacy and Security
41:33 Data Types and Sources
44:47 UCSF Outreach
46:34 Data Advantages and Limitations
57:12 Q & A

Recorded Tuesday, October 10th, 2023.