Скачать или смотреть CASK RARE-X DCP launch

The launch of the CASK data collection platform by RARE-X. RARE-X is an independent DCP specifically for rare diseases. The CASK DCP is championed by three CASK foundations worldwide: CASK Research Foundation, Angelina CASK neurological Research Foundation and Association Enfants CASK France. The three foundations agree that this registry offers the best possibility of getting the highest quality of data to the highest number of researchers.

The Data Collection Program is now open and we invite you to participate by sharing your data, which is critical for research. When you participate in data collection, sometimes called a disease or patient registry, you’ll help accelerate research and the development of new drugs and other therapies.
Collecting data is an essential step on a rare disease research journey and an important way for patients and their caregivers to contribute to advancing care for their communities.
To share your data, please visit the Data Collection portal: https://cask.rare-x.org/