Young Onset Dementia: Awareness, Care, and Support for Caregivers

In this episode of the Able to Care podcast, hosts Andy Baker and Nadine welcome back Sarah Merriman, an expert in the charity sector and a caregiver with extensive experience working for the Alzheimer's Society and tide. Sarah shares her personal journey as an unpaid caregiver and her deep passion for raising awareness about young onset dementia. The conversation delves into the unique challenges faced by individuals diagnosed with dementia before the age of 65, the importance of early diagnosis, and the need for age-appropriate support services. Sarah also highlights the work of the Young Dementia Network and the significance of co-production in service design to better support younger individuals with dementia. Join us as we explore the intricacies of young onset dementia and the critical need for tailored care and awareness.

Resources:

Tide- Together In Dementia Everyday:
https://www.tide.uk.net/

Young Dementia Network:
https://youngdementianetwork.org/

Dementia Forward:
https://www.dementiaforward.org.uk/ab...

Lewy Body Society:
https://www.lewybody.org/

Rare Dementia Support:
https://www.raredementiasupport.org/


Key Messages:

Importance of Early Diagnosis:
Early diagnosis of young onset dementia is crucial for accessing appropriate support, resources, and treatments that can improve the quality of life for individuals and their families. It enables better planning and management of the condition.

Challenges of Age-Appropriate Care:
Individuals with young onset dementia face unique challenges, including a lack of age-appropriate services and support. Tailored care and resources are essential to address their specific needs, as they may not fit into traditional elderly care settings.

Raising Awareness and Reducing Stigma:
Increasing awareness and understanding of young onset dementia is vital. By sharing experiences and knowledge, organisations and individuals can help reduce the stigma associated with dementia, ensuring that those affected receive the support and recognition they need.


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