Life with Ehlers-Danlos Syndrome: An Eye-Opening Journey Through Daily Challenges and Triumphs

My first podcast episode, I sit down with Elena, who has lived with Ehlers-Danlos Syndrome (EDS) – a rare and often misunderstood connective tissue disorder her whole life (like me). Throughout our conversation, Elena shares the challenges she has faced, from daily pain to joint dislocations and navigating a world that often doesn’t understand her condition.

But it's not all about the struggles – we also talk and celebrate her triumphs. Elena talks about the resilience and strength she's developed over the years, the support she’s found in the EDS community, and how she’s learned to live day to day despite the hardships.

This episode is an inspiring look into the life of someone who’s living with a chronic condition, offering both a powerful message of hope and a deeper understanding of the realities of Ehlers-Danlos Syndrome.


The book Elena references and gifts to her new doctors, Joint Hypermobility Handbook:
https://amzn.to/3ZXXzC2

Sci-Fi Book written by an author with Ehlers Danlos where the protagonist also has EDS [Author Rebecca Yarros]
https://amzn.to/3ZXTgGO









**Disclaimer: as part of the Amazon Associates Program I am eligible for commission from products that are linked above. **