12 BIZARRE ARACHNOIDITIS & CSF PRESSURE SYMPTOMS: Including my Covid and holiday flight experiences

In this video I discuss twelve of my most prominent - but bizarre - daily symptoms. I have been diagnosed with arachnoiditis (probably mildly adhesive) and a spinal CSF leak. Although we are unsure if I am still leaking or whether I now suffer more with CSF pressure and flow issues related to the arachnoiditis/ tarlov cysts and/ or post-leak. I seem to suffer with high pressure issues these days more than low pressure but after 7 years of suffering since my accident (a ladder fall) my whole intracranial pressure system is completely dysfunctional and unbalanced in many ways.

I also update on my case including: Having Covid in March 2022 and flying to Mallorca (2 1/2 hr flight) for a family holiday in April 2022.

Video content Summary:
0:00 - Intro
1:40 - Having Covid March 2022
4:23 - Family holiday to Mallorca Spain including flight
7:50 - 1.I have felt drunk for seven years
9:19 - 2.I usually feel weird: pressure & pain
10:48 - 3.Stiffness, stuckness & pulling sensation in my spine (11:48 Tarlov Cysts)
12:09 - 4.Sitting down aggravates all my symptoms & legs go numb
14:17 - 5.When I sit I am better leaning forward on hard chairs or with a wedge cushion
16:50 - 6.Standing in one position too long makes me feel really ill
18:25 - 7.I constantly feel compelled to move around
20:35 - 8.I get headaches & feel groggy in the nights & in the morning
22:09 - 9.My skin often has crawling pins & needles sensation
24:00 - 10.Going for a wee makes my head worse
25:54 - 11.My head is very hypersensitive to any ICP (Intracranial Pressure) changes
27:52 -12.My eyes & brain are supersensitive to lights & moving images

For the full summary of my medical history and footage of my January 2021 arachnoiditis flare see this 5 min video:    • MY SPINAL CSF LEAK & ARACHNOIDITIS ST...  

To see more about how I manage my arachnoiditis symptoms please see:    • MANAGING MY ARACHNOIDITIS : How I man...  

To read more about my arachnoiditis diagnosis in July 2020 and journey since then see: https://beckyhillblog.com/category/ar...

To view my Jan/ Feb 2021 arachnoiditis flare playlist including symptoms see:    • Arachnoiditis Flare January 2021  

Twitter: Beckyhill3

#Arachnoiditis #Adhesivearachnoiditis #SpinalCsfLeak #CSFleak #TarlovCyst #SIH

UK CSF LEAK CHARITY: https://www.csfleak.info/
US CSF LEAK CHARITY: https://spinalcsfleak.org/
SPINAL CSF LEAKS: Clinical Presentation, Investigation Findings, and Treatment Outcomes of Spontaneous Intracranial Hypotension Syndrome (NHNN authors): https://jamanetwork.com/journals/jama...
ARACHNOIDITIS: ‘Arachnoiditis – Taming the Most Painful Pain’ Dr Forest Tennant video
   • Arachnoiditis—Taming the Most Painful...  ​​
ARACHNOIDITIS: Suspecting & Diagnosing Arachnoiditis (J. Antonio Aldrete) https://www.practicalpainmanagement.c...
IV STEROID TREATMENT: A medical paper supporting the use of steroids in treating early stage arachnoiditis and in the prevention of further adhesive arachnoiditis: Immunotherapies in chronic adhesive arachnoiditis – A case series and literature review https://www.sciencedirect.com/science... And another case where IV methylprednisolone was successfully used: Idiopathic Arachnoiditis of the Cauda Equina: A Case Report from Tanzania https://www.karger.com/Article/FullTe...