Living with erythropoietic porphyria (EPP) | Sam Taylor and Ali Sparkes | Oxford Owl

Описание к видео Living with erythropoietic porphyria (EPP) | Sam Taylor and Ali Sparkes | Oxford Owl

Learn about living with an invisible disability and find out about Ali Sparkes' new book, Night Walker. Ali talks to Sam Taylor, the real life inspiration behind Night Walker. Sam has erythropoietic porphyria, a rare condition affecting 1 in 75,000 people which causes abnormal sensitivity to light resulting in acute pain. It is thought the condition explains the origins of vampire folklore – but Ali and Sam are turning this stereotype on its head.

Find out more about how Sam inspired Ali to create her character Spin on the Oxford Owl blog:
https://blog.oxfordowl.co.uk/living-i...

What is Oxford Owl? Oxford Owl for Home has been created especially for parents by Oxford University Press to give you free expert advice, ideas and activities to support your child’s learning at home: https://www.oxfordowl.co.uk/for-home/

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