Do Tics Hurt? | The Painful Reality of Tourette's

It’s Tourette’s Awareness Month!! (15th May-15th June) 🙌🏻 
Following the TA theme for 2024, this video talks about a hidden part of Tourette’s not many people see: the pain.

I’ve been in hospitals many times due to my tics, and they’ve caused me so many injuries. I have chronic neck pain, and muscle spasms every day and lots of people are physically limited by their tics.
It’s important we recognise and educate people on the fact that Tourette’s ISN’T just swearing or funny words—it’s a complex condition causing so many hidden struggles! 🧠

→ Tourette’s Action (our UK TS charity) is running a campaign this year called “Tourette’s Hurts” highlighting the pain and physical impact of our tics. Living with Tourette’s isn’t fun or easy, despite some of our tics seeming lighthearted or entertaining at times 🎗️

You can find their website and information below - they run yearly residential trips, and support groups, give talks and have lots of advice and info for people with TS & their families 💙👇🏻
https://www.tourettes-action.org.uk/

#touretteshurts #tourettes #tourettesyndrome #awareness #disability

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✨ TIMESTAMPS✨
00:00 - intro
00:32 - tics are mainly physical!
01:38 - sensation of a tic
02:55 - chronic pain
03:38 - violent tics
04:42 - injuries
06:43 - suppressing tics
07:36 - TS is more than you think
08:24 - emotional pain
09:44 - summary
10:15 - live seizure episode
11:39 - Tourette’s Action
12:12 - outro

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✰ FAQs ✰
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and orthostatic hypotension along with being autistic and queer! I also advocate for mental health.
2. What is FND? 🧠
‣ https://fndhope.org/fnd-guide/
3. What is Tourette's?
‣ https://www.nhs.uk/conditions/tourett...
4. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
5. What filming equipment do I use? 📸
‣ main camera* - https://amzn.to/3MW7v8w
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(*af links mean i make a small cut from any purchases, but this doesn't cost or affect you! 💕)

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✰ About Me ✰
My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and living with Tourette's Syndrome, Functional Neurological Disorder (FND) and Orthostatic Hypotension. Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, YouTube & Instagram) to advocate and raise awareness for my conditions and share what it's like living as a neurodivergent and disabled person. I am autistic, sharing my sensory struggles along with my experiences with mental health disorders.
I share the accommodations I use to help my daily life, and I'm an ambulatory wheelchair user documenting my life using mobility aids and how chronic illness symptoms vary from day to day!
I'm a musician with a song called "She's Mine" available on all streaming platforms, and I'm an artist with a small business and website selling my artwork, disability merch. I also love reading, writing, and I'm currently writing a novel and a book/memoir about my life!