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Скачать или смотреть Elephants and Tea: Why AYAs Deserve Their Own Cancer Support Space

  • National Bone Marrow Transplant Link
  • 2025-06-18
  • 23
Elephants and Tea: Why AYAs Deserve Their Own Cancer Support Space
marrow mastersnbmtLINKcancer survivorshipAYA cancerElephants and Teafertility and cancerstorytelling in healthcarecancer communitydigital support groupsmisdiagnosis in young adultscaregiver supportcancer advocacy
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Описание к видео Elephants and Tea: Why AYAs Deserve Their Own Cancer Support Space

In this episode, we sit down with Nick Giallourakis, Executive Director of the Steven G. Cancer Foundation and co-founder of Elephants and Tea, a digital magazine and support platform for adolescent and young adult (AYA) cancer patients and survivors. We begin by learning about Nick’s brother, Steve, whose incredible journey as a five-time cancer survivor—including osteosarcoma, Secondary AML, renal cell carcinoma, and pleomorphic sarcoma—serves as the foundation and inspiration for Nick’s work.

Nick walks us through the origins of Elephants and Tea, which he co-founded with his mother, Angie. The platform emerged from a need for authentic, uncensored storytelling within the AYA cancer space. They pivoted from a traditional media model to a platform where survivors share their stories in their own words. This decision came from listening to survivors who didn’t want their experiences diluted. The magazine’s name—suggested through a contest—symbolizes the raw truth of cancer as the “elephant in the room,” while “tea” represents the comfort found in open dialogue.

Nick highlights key challenges AYAs face: financial toxicity, unstable careers, insurance struggles, dating, and misdiagnoses due to age biases. He’s encouraged by the growing trend of self-advocacy in this group, including the rise in second opinions. We reflect on the post-COVID landscape, noting how virtual platforms opened doors for more isolated individuals, while in-person connections remain essential for others.

We touch on caregiving—especially for AYAs where roles can be filled by peers, not just parents. Nick emphasizes the importance of caregivers asking for help and delegating tasks. He also speaks candidly about the emotional toll of losing community members and the need to acknowledge and process that grief.

We explore how storytelling fuels community-building at Elephants and Tea. The magazine has contributors from 15 countries, highlighting a global hunger for connection and support. Nick shares how partnerships—like their impactful collaboration with Walgreens—are making tangible changes, such as mandatory fertility counseling for patients receiving chemo for the first time. Behind the scenes, they're working with industry and medical organizations to use these stories for systemic change.

As for what’s next, Elephants and Tea continues to expand its in-person programming, including regional magazine release events. They're consistently surveying their audience to ensure their efforts are aligned with current needs. Nick leaves us with a heartfelt story of a late community member who, through a simple virtual Halloween hangout, helped spark deeper bonds and outreach across the cancer community.

More:

Elephants and Tea: https://elephantsandtea.com

Steven G. AYA Cancer Research Fund: https://stevengcancerfoundation.org

Cancer and Fertility Magazine produced by Elephants and Tea WITH Walgreens: https://elephantsandtea.org/cancer-fe...

YA Cancer Gabfest (Cactus Cancer Society): https://cactuscancer.org/ya-cancer-ga...

Stupid Cancer: https://stupidcancer.org/

Thanks to our Season 17 Sponsors:

Leukemia and Lymphoma Society (LLS): https://lls.org/

and Incyte: https://incyte.com/

YouTube Chapters (Jon Delete after creating YouTube):

0:00 – Welcome & Introduction to Nick
1:00 – Steve’s Cancer Journey
3:20 – Founding Elephants and Tea
6:30 – The Power of First-Person Storytelling
8:00 – Global Community and Behind-the-Scenes Advocacy
10:30 – Partnership with Walgreens: Fertility Protocol Change
12:00 – Unique Challenges for AYA Cancer Survivors
15:30 – Misdiagnosis and Self-Advocacy
17:00 – Virtual vs. In-Person Support
19:00 – Caregiving Advice for AYAs
21:30 – Emotional Toll of Loss in the Community
23:30 – What’s Next for Elephants and Tea
25:40 – Legacy of a Community Builder

National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.

nbmtLINK Website: https://www.nbmtlink.org/

nbmtLINK Facebook Page:   / nbmtlink  

Follow the nbmtLINK on Instagram!   / nbmtlink  

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