Скачать или смотреть International Limb Girdle Muscular Dystrophy Conference 2025

Welcome to the highlight reel from the 2025 International Limb Girdle Muscular Dystrophy (LGMD) Conference, hosted by The Speak Foundation. This video captures the energy, knowledge-sharing, and human connection that made this year’s gathering truly meaningful.

🎯 About SPEAK

Since its founding in 2008, The Speak Foundation has been the first patient-led organization supporting individuals with LGMD and related neuromuscular diseases. Their mission is to empower voices through education, advocacy, and community support.

Programs include:

Global advocacy efforts and summits

Scientific workshops and grant programs

Their LGMD Patient Network and free LGMD News magazine for individuals and families

Financial support programs (e.g. PCA stipends, travel assistance, equipment grants)
The Speak Foundation

🎥 Malone Media’s Role

At Malone Media, we were honored to support this conference by delivering:
AV and production services
Live streaming and video capture
A polished highlight reel to amplify the conference’s reach

We believe in using storytelling and technology to elevate missions that matter—and SPEAK’s mission is exactly that.

If this reel inspires you, please like, comment, and share. Your support helps amplify awareness for LGMD and the incredible work that SPEAK is doing.