CALI GETS HER HALO REMOVED | SURGERY DAY | PFEIFFER SYNDROME

Описание к видео CALI GETS HER HALO REMOVED | SURGERY DAY | PFEIFFER SYNDROME

The big day we've been waiting for is halo removal surgery! I will take you through our surgery day, from our morning routine to getting home the next day!

My sweet daughter Caliyah Joy was born with a rare syndrome called Pfeiffer Syndrome, which causes premature fusion of certain bones of the skull (craniosynostosis), affecting the shape of the head and face. You will see her overcome many obstacles and live life to the fullest despite her disability. If you are still wondering, what is Pfeiffer Syndrome? Well, you can learn all about it here,    • WHAT IS PFEIFFER SYNDROME? PART 1|CRA...  
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Join my membership and pick either the Cali Crew or Cyber Auntie and Uncle to get access to perks from emojis, pop-up lives, bonus videos, and more!
   / @wearethejohnsonfamily  
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You can shop Cali's closet, her favorite toys, the Johnsons closets, home decor, and more, all links are here, https://www.shopltk.com/explore/Fales...

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