Shefaly and Aminur - "In memory of Saarah."

Shefaly Begum and Aminur Ahmed are family members of Saarah Ahmed who lived with kyphoscoliotic Ehlers-Danlos syndrome (kEDS) and tragically passed away on April 13, 2021, aged 20.

Saarah was a finalist for Miss Universe GB, and an active advocate within her community and globally. Her goal was to raise awareness to healthcare professionals and the communities about hidden disabilities and kyphoscoliotic EDS. She was a beautiful person - caring and wise beyond her years. She had so much wisdom. She wanted to go to university to study neurology. She wanted to help other people.

Her proud mum, Shefaly Begum, and brother, Aminur Ahmed, want to tell Saarah’s story and fulfill her dream of educating people about Ehlers-Danlos syndrome (EDS).

Learn more about kEDS here: https://www.ehlers-danlos.com/what-is...