Скачать или смотреть Patient partner as a Co-Principal Investigator of a Clinical Trial

This webinar features Prof. Dr. Med. Elisabeth Kappos, Senior Physician at the University Hospital Basel, who is the PI of the LYMPH trial, and Prof. Maria Katapodi, Professor of Nursing Science at University Basel, Switzerland, who serves as a patient partner and co-PI of the LYMPH trial. You can watch the entire conversation or use the timestamps below to find specific topics of interest.   

Key Topics:

Webinar Introduction (0:00-2:09): 
Dr. Karolina Werynska (RTFCCR) and Dr. Upal Basu Roy (the LUNGevity Foundation) introduced the webinar on patient partner involvement in clinical research, focusing on the role of patient partners as study co-principal investigators. 

Introduction of Panelists (2:10-2:37): 
Professor Dr. Elizabeth Kappos, a breast cancer surgeon from USB, Basel, CH, and Professor Maria Katapodi, a professor of nursing and research group leader in Basel, CH, both involved in the Lymph Trial. 

The Lymph Trial Overview (2:38-3:41): 
Prof. Elizabeth Kappos provided an overview of the Lymph Trial, focusing on the treatment of chronic breast cancer-related lymphedema through surgical options and the importance of patient-reported outcomes. 

Patient Perspective on Lymphedema (3:42-6:34): 
Prof. Maria Katapodi highlighted the significant impact of lymphedema on patients' daily lives and the importance of addressing even minimal burdens to improve their quality of life. 

Development of the Lymph Trial (6:35-13:08): 
Prof. Elizabeth Kappos explained the development of the Lymph Trial, emphasizing the role of patient advocates in shaping the research question and the focus on patient-reported outcomes. Prof. Maria Katapodi discussed the trial's pragmatic design, the importance of reducing patient burden, and the need for patient support and compensation.

Challenges and Solutions in Trial Design (13:09-13-41): 
Prof. Elizabeth Kappos and Prof. Maria Katapodi addressed the challenges in trial design, including the need for flexibility and creativity to ensure patient participation and the importance of clear communication and informed consent. 

Compensation and Support for Patient Partners (13:42-17:30): 
Prof. Elizabeth Kappos and Prof. Maria Katapodi emphasized the importance of compensating patient partners fairly and ensuring their involvement is valued and supported throughout the trial. 

Dissemination and Implementation (17:31-26:06): 
Prof. Maria Katapodi discussed the importance of evaluating, disseminating, and implementing trial results to inform future studies and benefit the patient community.

Collaboration and Mentorship (26:07-37-49): 
Prof. Elizabeth Kapos shared her experience of being inspired by her mentor, Walter Weber, to involve patient advocates in research and the importance of mentorship in fostering such collaborations.

Advice for Facilitating Collaborations (37:50-40:41): 
Prof. Elizabeth Kappos and Prof. Maria Katapodi provided advice on facilitating similar collaborations, emphasizing the need for conscious decisions, clear communication, and valuing patient input.