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Congenital Central Hypoventilation Syndrome (CCHS) is an extremely rare genetic disorder affecting roughly 1500 people worldwide. There is no known cause, cure or even medication for this complicated and heartbreaking diagnosis. For many years, there was very little financial support for the critical research needed to change the fate of CCHS. But a wave of support has started to grow! Help add gravity to our cause by watching our call to action video and going to www.cchsnetwork.org and @cchsnetwork to learn more. This video uses the sounds of a mechanical ventilator, the only form of treatment available for those living with CCHS. Your donation can help change that! Special thanks to CCHS Hero Beanie Feldstein for lending her voice to our cause and to bLAck pARty /4 @Wolf + Rothstein for use of the song Bloom.