Vlogging with EDS: Care Package Opening, and Real Talk on Death and Advocacy | Week 97

I apologize for this being so late! Unfortunately, while I am in the hospital my upload schedule is going to pretty iffy. I promise I am trying my very best here!

This video is dedicated to Claire Wineland and her family. Unfortunately Claire passed this week after suffering a stroke due to rare complications caused by lung transplant performed a few days before. She was a shining light that will forever be missed. At just 21 she had captured the heart of millions through her public speaking and signature candor. Claire started a foundation at the age of 16 to raise funds and awareness for others living with Cystic Fibrosis and it was her greatest wish that her legacy continued on after she no longer could, so please consider making a donation of any kind to her charity.http://clairesplacefoundation.org/ We may not have shared the same diagnosis, but we shared the same heart, the same hopes, the same goals, and the same Earth (the one she hoped to leave a better place than the one she had entered ). I don’t know why she is gone and I have been given more time here, but you had better believe that I will not let the conversations that she started end with her.

Claire Wineland:   • Meet Claire, Finding Beauty in the Sa...  

   • Claire Wineland at Zappos All Hands M...  
   • Don't wait to be healed to start serv...  
   • Claire Wineland gives inspirational t...  
   • TEDxLaJolla - Claire Wineland - It's ...  

Clairesplace Foundation: http://clairesplacefoundation.org/

Lauren Rowe:    / @giftedlife  
Instagram: https://www.instagram.com/rejectingla...

Backpack Health: https://www.backpackhealth.com/

CTD Patients can join the "Marfan and Related Disorders group on the app for a free PRO membership*

We ended up loving the lotion from my care package and it is the ONLY thing that has EVER helped my moms excess and psoriasis, So I figured I would share the link.: https://www.target.com/p/weleda-skin-...

it DOES have a slight citrus scent but it is just naturally from the ingredients and not overpowering


Where to find me:

My Instagram: @watercolor_me_impressed   / watercolor_me_impressed  

My Etsy Shop: https://www.etsy.com/shop/ChristinaPa...

My Redbubble: http://www.redbubble.com/people/chris...

My Medical Facebook: https://www.facebook.com/LoveOnChrist...

My Personal Facebook:   / christina.doherty.315  

My Twitter: https://twitter.com/C_DohertyPaints?l...

My Email: [email protected]




Accessibility by Abby provided the captions for this video for free. If you'd like to support this chronic illness warrior here are her social links:
Twitter:   / accessibleabby  
Facebook:   / accessibleabby  
Ko-fi: ko-fi.com/accessibleabby"






Lullabye (Sting) by Twin Musicom is licensed under a Creative Commons Attribution license (https://creativecommons.org/licenses/...)
Artist: http://www.twinmusicom.org/