Support for Parents of Adult Children with Ataxia | Care Partners

Care Partners have an essential role in the lives of their loved ones with Ataxia. In this session, you'll gain insights from a panel of caregivers who share their stories, challenges, and strategies for managing the complexities of rare disease care. Discover a supportive community, learn practical tips, and find strength in shared experiences, all aimed at enhancing your caregiving journey.

Ataxia is a rare neurological disease that can have a wide array of genetic origins. For more information on Ataxia, please visit our website: www.ataxia.org

Become a Free NAF member! http://bit.ly/JoinNAF

Follow us on Social Media!
NAF Facebook:   / ataxiafounda.  .
NAF Twitter:   / naf_ataxia  
NAF Instagram:   / ataxiafound.  .
NAF Subreddit:   / ataxia  

About the Speakers-

Panelist 1: Marian McDowell is the mother of an adult son with Friedrichs Ataxia. She has a degree in early childhood education and had a career as a primary school teacher. She worked with adults with Learning Disabilities for many years after she retired from teaching.

Panelist 2: Suzanne Martin is a wife and mother of two adult children. Her 26-year-old daughter was diagnosed with a rare form of cerebellar ataxia from a non-inherited gene mutation. Since her daughter’s diagnosis in 2021, she has become an active member of NAF. She is involved with fundraising, advocacy, and support groups.