Family Perspectives on Navigating a CHARGE Syndrome Diagnosis

Описание к видео Family Perspectives on Navigating a CHARGE Syndrome Diagnosis

Family Perspectives on Navigating a CHARGE Syndrome Diagnosis presented at the EHDI Conference in March 2024 - personal stories shared by parents of children with CHARGE syndrome, including when they received their diagnosis, the challenges of trying to navigate the health system, and what resources contributed to building a network of support.

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