Behind The Mystery: Fibrodysplasia Ossificans Progressiva (FOP)

One of the world’s rarest diseases is typically misdiagnosed for years while the clock ticks. By that time, your child may have already experienced common procedures or incidents that could cause Fibrodysplasia Ossificans Progressiva (FOP) to worsen. And because FOP is irreversible and causes bones to grow in soft tissue, essentially freezing it in place, it can be devastating.

Only one or two people in every million will ever experience FOP, and most of the world’s physicians will never know about FOP. We’ll meet two of these rare individuals: a courageous young woman with Fibrodysplasia Ossificans Progressiva, and her physician who recognized her FOP early. You’ll also learn about the small but mighty FOP community that’s creating greater awareness of this ultra-rare disease that makes bone grow where it shouldn’t.

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