Скачать или смотреть Our experience with hippotherapy and Sanfilippo Syndrome

Should parents consider hippotherapy for a child with Sanfilippo Syndrome? Hear what Eli’s mom Jaime says about their experience with hippotherapy, which is the integration of therapy services such as OT, PT, or speech with equine-based activities.

Eli has been participating in hippotherapy for more than seven years and Jaime shares the benefits they’ve seen, their strategies to make the sessions as beneficial as possible, and how the therapy has evolved as Sanfilippo has progressed.

Life with Sanfilippo Syndrome presents unique challenges to every aspect of life. Families of children with Sanfilippo Syndrome are generously sharing insights into their lives and how they ensure their child has the best care and quality of life.

Learn more about hippotherapy and Sanfilippo Syndrome by watching the archive of Sanfilippo Speak on the subject. Sanfilippo Speak is the Foundation’s family support webinar series that provides Sanfilippo-specific insights around pivotal topics. In April, the session focused on exploring hippotherapy as a modality for individuals with Sanfilippo and discuss the differences between hippotherapy and therapeutic riding and their benefits.

Sanfilippo Speak: Hippotherapy
https://curesanfilippofoundation.org/...

#lifewithsanfilippo #curesanfilippo #hippotherapy


00:00 Introduction
00:08 History and schedule with hippotherapy
00:49 How Eli engages with hippotherapy
02:00 Strategies and challenges for successful hippotherapy sessions
03:15 Message to families considering hippotherapy
03:23 Benefits they’ve seen from hippotherapy
04:53 Appreciation for hippotherapy


Sanfilippo Syndrome is a terminal, degenerative disease that causes children to lose all the skills they’ve gained, suffer seizures and movement disorders, experience pain and suffering, dementia, and then die usually in their teen years. It is caused by a single gene defect which leads to lack of a necessary enzyme in the body. This lack of enzyme results in the build-up of toxic storage in every cell and is especially harmful to the brain. This build-up causes a cascade of detrimental effects and ultimately death. Sanfilippo Syndrome is often referred to as being like Alzheimer’s, but in children. Currently there is no FDA-approved treatment or cure for Sanfilippo Syndrome.


Get to know the Clark family: https://www.CureSanfilippoFoundation....

Learn more about Sanfilippo Syndrome: https://curesanfilippofoundation.org/...

Learn more about Cure Sanfilippo Foundation: https://curesanfilippofoundation.org/...

Help these children and families by donating: https://curesanfilippofoundation.org/...


Facebook:   / curesanfilippofoundation  
Instagram:   / curesanfilippofnd  
TikTok:   / curesanfilippo