Cash's Patient Story: Congenital Central Hypoventilation Syndrome (CCHS) Treatment

Cash, a vibrant five-year-old, was born with congenital central hypoventilation syndrome (CCHS), a rare condition causing his body to "forget" to breathe when asleep.

Faced with Cash's dependence on a ventilator, and the fact that he lived with a tracheostomy that left him vulnerable to infections, his mother Tracy discovered a revolutionary treatment: a breathing pacemaker that works by stimulating the nerves to the diaphragm, which is the muscle involved with breathing.

After contacting Phoenix Children's, Cash underwent a pioneering surgery under Dr. David Notrica in July 2013 — the first of its kind for a pediatric patient in Arizona.

Witness Cash’s life-transforming journey, from ventilator dependence to breathing freely with a breathing pacemaker, and see the changes that have brought newfound freedom and joy into his and his family's life.

To learn more or schedule an appointment:
• Visit https://www.phoenixchildrens.org
• Call us at 602-933-5437