Digital end-of-life records: what’s needed, what’s likely, what’s possible

A 60 minute webinar hosted by Compassion in Dying and the University of Leeds

Join us for a thought-provoking conversation where we consider what’s needed from a digital end-of-life record and question if we have the right balance between delivering what people need vs what the healthcare system needs.

This solutions-focused, free webinar launches research from the University of Leeds on how digital end-of-life records are being used in practice. It examines current innovation and shows the difference that seamless digital sharing of key information can make to a person’s death and their family’s bereavement.

We discuss these questions and more:

Who are digital end-of-life records designed for?
How could the technology, infrastructure, and uptake of digital end-of-life records improve how they are used for palliative and end-of-life care?
How are different areas in the UK innovating?
What is NHS England doing to address the problems people are facing?
What do people themselves want and expect a digital health record to do: consent, who can access and edit it, and what’s included?
What are the outcomes for people and the healthcare service when digital records work well?

Speakers:
Dr Anushka Aubeelack - Specialist Anaesthetist and Vice-Chair of Compassion in Dying
Matthew Allsop: Associate Professor of Palliative Care, University of Leeds
Miranda Ashitey: lived experience of sharing end of life decisions
Usha Grieve: Director of Partnerships and Services, Compassion in Dying
Dr Ian McNicoll : former GP And health informatician
Jacqueline Birtwistle: Research Fellow in Palliative Care, University of Leeds
Dr Karen Chumbley: Chief Clinical Officer, St Helena

Digital end-of-life records should be a vital tool in ensuring key information and wishes can be known and acted on, but too few people are benefiting from them. Join us to explore what people and health and social care professionals think needs to change, and consider how we can bring this about together.