Скачать или смотреть Celebrating Rare Disease Day 2023

Jett Foundation hosted its 6th annual Rare Disease Day Event with rare disease advocates, speakers from the Duchenne space, and more who shared their experiences and advice around mental health and anxiety in Duchenne.

Speakers: Dr. Albert Freedman, Family Psychologist; Luke Hains,
Home Health Aid & Sibling to loved one impacted by Duchenne; Amanda McConathy, Mom and Sibling to loved ones impacted by Duchenne; Gavriel Rosenfeld, Individual impacted by Duchenne; Cal Quitzau, Individual impacted by Duchenne; Ryan Russell, Ph.D., Certified Life Coach and author.

Moderators: Kyle Bryant & Sean Baumstark, hosts of Two Disabled Dudes Podcast.

This event was originally hosted live via Zoom on February 28, 2023.