There are an estimated 17 million women in the USA who have lipedema and most don't know it. (And as many as 350 million women worldwide.) Filmmaker and patient Catherine Seo brings us on a journey of discovery, as she explores this misunderstood and commonly misdiagnosed disease.
When her own lipedema diagnosis was overlooked, Catherine’s seemingly inexplicable weight gain during peri-menopause led to complications, several surgeries, and eventually to incapacitating pain and threatened mobility. Catherine knew there was more to what was happening than just regular “FAT”. Her surgeon could not explain the worsening symptoms and simply attributed it to her weight. When he would not investigate other possible explanations, she knew that if there was an answer, she was going to have to be the one to find it.
She began to understand why many patients never receive the care and help they need, regardless of their tremendous efforts to achieve wellness. She heard many stories about the prevalence of Anti-Fat bias in healthcare and also of the innovation of a handful of doctors in treating this disease. As the pieces came together, a bigger story emerged.
What is Lipedema?
Lipedema is a relatively common fat disorder often mistaken for simple obesity. Its clinical diagnosis is an adipose tissue disorder or a lipid metabolism disorder. A typical lipedema patient is a woman who struggles with large hips and legs, usually out of proportion to the rest of her body. Lipedema also appears in the upper arms. One of the hallmarks of the disease is that lipedema fat is relatively unresponsive to standard diet and exercise. These measures may lead to weight loss in other areas, but the size of the hips and legs remains disproportionately large.
Lipedema is a disorder of the adipose tissue distinguished by five characteristics:
☑️ it can be inherited;
☑️ it occurs almost exclusively in women;
☑️ it can occur in women of all sizes, from the seriously underweight to the morbidly obese;
☑️ it involves the excess deposit and expansion of fat cells in an unusual and particular pattern – bilateral, symmetrical, and usually from the waist to a distinct line just above the ankles; and
☑️, unlike the “normal” fat of obesity, lipedemic fat cannot be lost through standard diet and exercise.
About Catherine Seo, PhD
"I’ve struggled with body and weight issues for most of my 70 years. After gaining a significant amount of weight during puberty, I lost 140 pounds in my mid-30s. I was able to keep this weight off for over 25 years until the hormonal changes of menopause showed up. Despite rigorous diet and exercise, I started gaining weight again and developed severe swelling, impaired mobility, and excruciating pain.
I began an intensive research process, discovering lymphatic disorders, lymphedema, and eventually lipedema. In July 2012, I was diagnosed with lipedema and lymphedema (also known as lipolymphedema). It’s the same disorder that affects up to 17 million women in the United States and as many as 350 million women worldwide.
Initially, my research into the world of lipedema and fat/lymphatic disorders was deeply personal: I created this website, Lipedema Simplified, to help my own healthcare providers help me understand lipedema. Quickly, I began to hear from women from around the world who were also looking for answers. TOGETHER IS BETTER! When we connected, we began to build communities based on shared personal experiences, support, referrals, camaraderie, and friendship.
During these years, I traveled to Europe numerous times interviewing dozens of patients, doctors, surgeons, researchers, and scientists - this became the documentary, The Disease They Call FAT in 2015, and the book, Lipedema-The Disease They Call FAT: An Overview for Clinicians in 2017.
I'd be happy to help you navigate your journey with lipedema, lymphedema, and the many options that are available to help you create your best life even with this disorder."
Catherine Seo, Ph.D, Founder & Director, Lipedema Simplified, Director, The Lipedema Project, MasterClass Course Director, and a professor of psychology.
For more information, visit us at our official websites and public accounts:
Lipedema Simplified Website ➡️ https://lipedemaproject.org
Lipedema Project Website ➡️ https://lipedema-simplified.org
Lipedema Simplified Facebook Page ➡️ / lipedemasimplified
Lipedema Project Facebook Page ➡️ / lipedemaproject
Lipedema Simplified Instagram account ➡️ / lipedema.simplified
Lipedema Simplified TikTok account ➡️ / lipedema.simplified
Find out if you have lipedema.
➡️Do You Have Lipedema? Quiz
https://lipedemaproject.org/do-you-ha...
Trying to find a doctor? Find one in our Directory.
➡️https://lipedemaproject.org/lipedema-...
#lipedema #lipedemalegs #lipedemapatients #lipedemaresearch #lipedemadocumentary
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