Laughter & Tears: DMD Family's Journey Back to Normalcy

What tips do you have for creating and maintaining a routine? Let us know in the comments!
After 33 days away from home, we are finally returning to 'normal'! This week we navigate the challenges and the 'fun' of getting back into a routine. We juggle school, appointments, and the ever-present reality of Duchenne Muscular Dystrophy (DMD).

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What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy.

HUGE THANK YOU to Sarepta (Elevidys) and Seattle Children's Hospital!!!
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Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this YouTube channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy.

For our first 7 days, we posted one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy.
You can watch that here ➡:    • Mason's Gene Therapy  

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We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to YouTube to help spread the message and raise awareness of this rare disease.

You can follow us here 👇
  / bafusfamily  
https://youtube.com/@BafusFamily?si=D...

#duchenne #duchennemusculardystrophy #dmd #musculardystrophy #preschool #familyvlog