HDYou Community Stories: Experiences from the HD-CAB Round Table Discussion

In September, the HD Community Advisory. Board (HD-CAB) hosted a discussion with international HD advocates to share their thoughts and experiences to an audience of industry partners, associations and researchers. Topics included their day to day lives, educational barriers, meaningful outcomes and understanding about research.

Three participants, Jessica, Rob and Claudia, discuss their takeaways and impact of this discussion.

HD-CAB is a partnership between the European Huntington Association, International Huntington Association and HDYO. More information can be found at hd-cab.org.

HDYou Community Stories is sponsored by Roche, Sage Therapeutics, Teva Pharmaceutical, uniQure, Wave Life Sciences, Neurocrine Biosciences and Griffin Foundation.