Self Advocacy: The Bi-focal View of Rare Sleep with Veronica Moore

At #BeyondSleepy 2024 in Houston, TX, Veronica Moore opens up the conversation on how to self-advocate for yourself when you have a sleep disorder.

Veronica Moore, MA, is an experienced patient advocacy manager, health equity and inclusion advocate, public health educator, and Hypersomnia Foundation board member.

Veronica has more than 15 years of experience engaging with advocates, patients, caregivers, advocacy groups, and healthcare professionals on a range of topics spanning from clinical trial design, data collection and analysis, patient advocacy, patient engagement and recruitment, patient education, community engagement, and pharmacovigilance. More than half of her professional career has been dedicated to working with rare disease patient communities. She holds a Bachelor of Science in Public Health from East Carolina University and a Master of Arts in Sociology from North Carolina Central University.

Veronica currently is an Associate Director of advocacy manager at a global biotechnology company focused on supporting rare and rheumatic/autoimmune disease patient communities. In addition, Veronica currently serves on various advisory boards at Duke University and a host of other nonprofit organizations that are focused on diversity, equity, and inclusion (DEI); community engagement among underrepresented communities and rural settings. Veronica is a longstanding and significant contributor to the rare disease community, and she is committed to addressing health inequities in rare and communities that have been historically marginalized.


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