Interview with the authors of the European ME Alliance survey report.

Earlier this month, the European Myalgic Encephalomyelitis Alliance (EMEA) released a 235-page report on a survey of ME/CFS patients in Europe titled “Same disease, different approaches and experiences.”  The authors are Arild Angelsen, a board member of the Norwegian ME Association and a professor at the School of Economics and Business at Norwegian University of Life Sciences, and Trude Schei, assistant secretary general of the Norwegian ME Association. (Contact: [email protected])

More than 11,000 people from 44 countries responded to the online survey, which was conducted between May and August of 2021. A small minority were from three non-European countries: the US (486 respondents), Canada (156), and Australia (90). The executive summary is an excellent overview of the overall findings; the bulk of the report provides specifics for each country separately.