Standard of Care or Clinical Trials - How Do Patients Choose with Carole Scrafton

Meet Carole Scrafton, a passionate patient advocate and founder of Flutters and Stutters, a patient organization dedicated to improving the lives of those affected by chronic illnesses and rare diseases. In this episode, Carole and Maya explore how Standard of Care shapes the patient journey and experience throughout healthcare, going beyond just access to treatment.

Chapters
00:00 Introduction and Importance of Standard of Care
02:22 Standard of Care from a patient's perspective
05:50 Carole's patient journey
11:00 Factors Influencing the Decision to Join a Clinical Trial
21:49 Standard of Care Across Countries
25:47 The Role of Patient Engagement in Clinical Trial Protocol Development

Follow Maya Zlatanova:   / mayazlatanova  
Follow Carole Scrafton:   / fibroflutters-655756108