Скачать или смотреть #25 What is the truth about prenatal testing?

In this conversation, we open up about our personal journey through the uncertainty and emotional challenges of prenatal genetic testing after learning our son Abel might have Trisomy 18. We share how the confusing and often conflicting information from medical providers created a rollercoaster of hope, fear, and tough decisions. We also reflect on how the words spoken to us—sometimes harsh or careless—left lasting impressions, and how important it is to have medical teams who truly honor the value and dignity of every child, no matter the diagnosis. While these tests can be helpful, they aren’t always reliable, and the decisions families face are deeply personal and filled with complexity. Through sharing our story, we hope to bring encouragement and clarity to others walking a similar path, reminding you that you are not alone and that it’s okay to ask questions, seek compassionate care, and hold onto hope.

Key Takeaways:

Prenatal genetic testing can have high false-positive rates, especially early in pregnancy, so results should be understood carefully.

The language and attitude of medical providers profoundly affect parents’ emotional experience—words can leave deep marks.

Every child is worthy of love, dignity, and care, regardless of any diagnosis or prognosis.

The choice to continue or end a pregnancy is personal and involves real grief and loss in either path.

It’s important to ask your healthcare provider how they counsel families and what their perspective on life and care is before testing.

Finding a supportive and affirming medical team can make a big difference in your journey.

If you’re facing similar challenges, we want you to know you don’t have to walk this alone. Please visit https://abelspeaks.org/ to connect with others who understand and to find support.

00:00:00 Understanding Prenatal Genetic Testing
00:01:30 Navigating Incompatible Test Results and High False Positives
00:03:13 The Emotional Roller Coaster of Genetic Testing
00:04:41 Understanding Prenatal Testing Reliability
00:05:58 Ethical Implications of Prenatal Genetic Testing
00:08:48 Navigating Difficult Decisions: Processing Genetic Testing Results
00:10:28 Navigating Choices: Embracing Life's Redemptive Journey
00:12:00 Inaccuracies in Prenatal Testing for Down Syndrome and Trisomy 18
00:13:34 Misdiagnosis Concerns in Prenatal Testing
00:16:27 Embracing Life Amidst Uncertainty: Genetic Testing Decisions
00:17:59 How to Reach Support at Abel Speaks