EDS & HSD Q&A | Ehlers Danlos Syndrome & Hypermobility Spectrum Disorder Awareness Month

Answering your questions on EDS & HSD in honour of Ehlers Danlos Syndromes & Hypermobility Spectrum Disorder Awareness Month

If you have any more questions please let us know in the comments!

Chapters:
00:00-00:39 - Introduction
00:39-01:36 - What is EDS and HSD?
01:36-02:53 - What is the difference between HEDS, HSD and JHS?
02:53-04:36 - How did you get your diagnosis of EDS?
04:36-05:31 - Have you always had EDS?
05:31-06:25 - How does this affect me?
06:25-08:36 - What are the most common commonality & complications?
08:36-09:59 - What types of pain do you feel and how do you describe them?
09:59-11:30 - What are your top EDS hacks?
11:30- 14:26- What is your best advice for someone who has been newly diagnosed?
14:26- 17:27 - How do you explain EDS to those around you?
17:27-19:08 - How can I support someone with EDS?
19:08-20:49 - What should I do if I think I might have EDS or HSD?
20:49-21:22- Can you have EDS or HSD without subluxation or dislocation?
21:22-22:58- Where can I find support as someone with EDS or HSD?
23:00-23:48- Conclusion

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Ehlers Danlos - https://www.ehlers-danlos.org/

PoTS UK - https://www.potsuk.org/

MCAS - https://www.mastcellaction.org/