Why I Didn’t Talk About Ehlers Danlos Syndrome

This is why it took me so long to talk about Ehlers Danlos Syndrome. You often see me discuss Postural Orthostatic Tachycardia Syndrome, but less commonly EDS. I do have both. EDS is a connective tissue disorder. POTS is a disorder of the autonomic nervous system and both often present together.

References, Resources and Video Mentions:
In this video you'll see me refer to another EDS patient, Cortney Gensemer. She is also a researcher studying the condition and provides accurate information online. ‪@TheEhlersDanlosSociety‬ is also a reliable source of information. See ‪@DysautonomiaInternational‬ for POTS related resources.

(Summer Dashe is a former news anchor disabled by chronic illness. Her goal is to provide factual, reliable, and accurate information on her social media accounts. Using brutal honesty, a sprinkle of humility, and a dash of sick humor, she hopes her work helps educate, spread awareness, and empower.)