Telling Their Stories: Discrimination at the Doctor for Children with Disabilities

In this Complex Care Journal Club podcast episode, Dr. Stefanie Ames discusses a qualitative study that explores family experiences of discrimination in health care for children with medical complexity and disability. She describes the value of partnering with people with lived experience in research, implications for clinical practice, and important next steps from this work.

SPEAKER
Stefanie Ames, MD, MS
Assistant Professor, Division of Critical Care
Department of Pediatrics, University of Utah School of Medicine

HOST
Kristina Malik, MD
Assistant Professor of Pediatrics
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Children's Hospital Colorado

DATES
Initial publication: September 6, 2023

JOURNAL CLUB ARTICLE
• Ames SG, Delaney RK, Houtrow AJ, et al. Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity. Pediatrics. 2023;152(1):e2022060975. doi:10.1542/peds.2022-060975

OTHER REFERENCES
• Cook S, Mauskar S, Berry JG. Discriminating Against Children With Medical Complexity. Pediatrics. 2023 Jul 1;152(1):e2023061604. doi: 10.1542/peds.2023-061604. PMID: 37357723.
Marshall W. Improving care for CMC is also a systems issue. [Comment on the article "Perceived Disability-Based Discrimination in Health Care for Children With Medical Complexity"]. Pediatrics July 2023.

TRANSCRIPT
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CITATION
Ames SG, Malik K. Telling their Stories: Discrimination at the Doctor for Children with Disabilities. 09/2023. OPENPediatrics. Online Podcast.    • Telling Their Stories: Discrimination...  .