Скачать или смотреть Specialty Pharmacy 101: What rare disease patients should expect

Episode two of RareAF: Advocacy & Facts, Brian and Amanda break down what a specialty pharmacy really is—and why it should feel like an extension of your care team, not just a place that ships medication. They talk through how specialty pharmacies coordinate between providers, insurers, manufacturers and patients; monitor side effects and outcomes; and help navigate financial resources and stubborn insurance denials. You’ll also hear practical tips on self-advocacy, what you should expect from your specialty pharmacy, and how to find a team that supports your whole life, not just your rare disease.
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Disclaimer
The views expressed in this podcast are those of the speakers and do not necessarily reflect the views of Heritage Specialty Pharmacy. This content is provided for informational purposes only and should not be relied upon as professional medical advice. All statements are made as of the date of recording and are subject to change.
This podcast is for informational and educational purposes only and is not intended to provide medical advice or to replace the guidance of a qualified healthcare professional. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition or treatment.”
Discussions of specific therapies, brands, or treatment approaches do not constitute endorsement by Heritage Specialty Pharmacy. Product information is provided for general awareness and may not be appropriate for all individuals.
Mention of any specific product, company, or organization does not imply endorsement or affiliation by Heritage Specialty Pharmacy. Any trademarks or brand names mentioned are the property of their respective owners.

Resources:
Rare Diseases: Although Limited, Available Evidence Suggests Medical and Other Costs Can Be Substan…
Cost of Rare Diseases: The Trillion-Dollar Impact | RareDisease.net