Скачать или смотреть Health equity in Africa: Neglected Tropical Diseases, entrenched infectious diseases & Rare Diseases

Speakers:
Johnpaul Omollo, Health Research and Development - Program Officer, PATH (moderator)
Kelly du Plessis, CEO, Rare Disease South Africa
Samuel Agyei-Wiafe, Executive Director, Rare Disease Initiative Ghana
Dr Elizabeth Juma, World Health Organization Africa
Dr Roger Sombie, Professor of Hepato-gastroenterology, Yalgado Ouédraogo University Hospital & Joseph Ki-Zerbo University, Burkina Faso

Objective: Raise awareness on and look at patient engagement and co-creation in eliminating Neglected Tropical Diseases, entrenched infectious diseases.

This Session will look at the needs of Africa’s neglected and forgotten patient groups. The session will also look at meeting the needs of African patients with Rare Diseases in a UN resolution. The 74th World Health Assembly declared that January 30 will be the World Neglected Tropical Diseases (NTD) Day to raise the profile of these patients and their needs. Malaria, TB, and HIV/Aids are entrenched infectious diseases that Africa has failed to eliminate. When the University of Oxford announced that they have a successful Malaria vaccine in April 2021, many observed that compared with the COVID-19 vaccine development and approval, it had taken 60 years to get a vaccine for malaria within the Global Malaria Eradication Program that had started in 1955.

Patients with rare diseases do not enjoy the same level of access to quality health information and services that other patients enjoy. The Rare Diseases International is proposing a United Nations Resolution on Persons Living with a Rare Disease and their Families that effectively recognises the complex needs of persons living with a rare disease and promotes human rights and full participation in society of all people living with a rare disease. How will Africa support this?

This session also looks at the new biotechnology and genomic medicine clusters of excellence and regulatory collaboration that have become a game-changer in addressing many rare and orphan diseases using cell and gene therapies, and other health technologies improving diagnostics and tests, medical devices, repurposed medicines and biotherapeutics.