Alfie's Story - a Genetic Disorders UK / Jeans for Genes Day film

Описание к видео Alfie's Story - a Genetic Disorders UK / Jeans for Genes Day film

Alfie, aged 14, was born with chronic granulomatous disorder (CGD), a rare genetic blood condition that stops his immune system working properly, causing him repeated bouts of serious infection often resulting in pneumonia and abscesses of the skin, tissues and organs. Faced with an option to cure him of his life-limiting and life-threatening condition for good, he shares his personal journey of his bone marrow transplantation.

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