Скачать или смотреть Rare Disease Day Official Video 2024

Rare Disease Day 2024 shines a light on the global and diverse community of over 300 million people living with a rare disease and their families. Learn more by visiting our website: www.rarediseaseday.org

In an unprecedented effort, we invited individuals from around the world to share their stories in their own words and settings. With over 80 submissions from across the globe – spanning from Argentina to Italy, Bahrain to India – we've crafted a video that genuinely embodies the diverse experiences of the rare disease community.

Each participant, regardless of their nationality, age, gender, or type of disease – including rare cancers and undiagnosed conditions – had the opportunity to share their story. The challenge of selecting from these powerful submissions was immense, yet the outcome is a video that goes beyond telling stories – it amplifies them.

Available in more than 60 languages and disseminated worldwide by the 72 National Alliance patient organisation partners of Rare Disease Day, this video stands as a testament to our diverse, global community.

Watch it now, and be sure to share the video on your social media using the hashtag #RareDiseaseDay.

We would like to thank all of this year’s rare disease heroes for their participation in the campaign: Rachele, Nate, Logan, Zainab, Sai, Monica, Erika, Imran, Dan, Chapman, Marlene and her son AJ, Lauren, Aisha, Julia, Danielle, Iuliana and her son Victor, Lachy, Rose, Rifhan, Carlos, Ondine, Darren and his daughter Elly, Veronica, Justine, Kristian, Maria, Zyan and her daughter Safia, Daniela Sofia, Linda, Aline, Georgina, Owen, Kareem, Laura, Giovi, Cecilia, Jade, Roberta, Carla, Abigail, Evelyn, Maria, Catherine and Concetta and her daughter Sophie.

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More on the campaign

Every year this global, patient-led awareness campaign brings together millions worldwide in solidarity with the rare disease community. In 2023, thousands of events took place in over 100 countries, mobilising people living with a rare disease and their families, healthcare professionals, policy and decision makers, and industry and company representatives. We hope that this will grow even more in 2024!

Read our stories: https://www.rarediseaseday.org/heroes/
Get involved:https://www.rarediseaseday.org/downlo...
Find events happening near you: https://www.rarediseaseday.org/catego...

#RareDiseaseDay is organised by EURORDIS-Rare Diseases Europe and 72 National alliance partners.