Pelvis Pain led to my RARE, Gynecologic Cancer - Amanda | The Patient Story

In this cancer vlog, Amanda shares how she was diagnosed with two rare cancers. She was first diagnosed with a metastatic cancer of an unknown primary source. Her first symptom was a large lump in her left groin lymph node. Five years later she was diagnosed with extra ovarian primary peritoneal carcinoma.

She started feeling fullness/pressure in her pelvis and scans eventually revealed a grapefruit-sized mass in her pelvis, with part of it being a solid tumor. After surgery to remove the mass, the pathology revealed her diagnosis as extra ovarian primary peritoneal carcinoma, which is a rare gynecologic cancer.

Amanda and her team settled on chemotherapy and the immunotherapy, KEYTRUDA. Despite being in full remission, Amanda will do another year of KEYTRUDA.

#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #CUP #EOPPC #chemotherapy #radiation #rarecancer #lynchsyndrome #keytruda #immunotherapy

The Patient Story:

The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor.

Our editorial process adheres to the highest journalistic standards, ensuring medically researched, vetted, and fact-checked content. Backed by experienced medical professionals, we offer insights into the latest medical advancements.

Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner.

[Video Chapters]
00:00 Introducrtion
00:14 My family history of cancer
01:26 They found a large polyp in my colon
04:02 I was genetically tested and tested positive for Lynch syndrome
04:25 I found a lump in my groin
07:07 Finding out I had cancer
08:10 The official diagnosis of metastatic cancer of an unknown primary source
08:21 Undergoing testing and scans
09:28 Surgery and radiation
10:22 My latest cancer diagnosis
10:51 I felt this pressure in my pelvis
11:54 They found a grapefruit size mass in my pelvis
14:15 My diagnosis: Extraovarian primary peritoneal carcinoma
15:54 Deciding to do chemotherapy and immunotherapy (KEYTRUDA)
17:06 I had no idea what to expect with chemotherapy
18:00 My side effects of chemotherapy
19:12 Claritin worked for me!
20:36 I made a cancer registry because people wanted to help
21:23 I am in full remission now, but I am continuing immunotherapy (KEYTRUDA)
22:06 My side effects of immunotherapy (KEYTRUDA)
22:49 How the process of KEYTRUDA works
23:46 KEYTRUDA makes me really tired
25:08 Take advantage of the resources at the hospital!
25:40 My BIGGEST advice

Join Our Community:

Sign up for our FREE website: https://thepatientstory.com/
Facebook:   / thepatientstory  
Instagram:   / thepatientstory  
Twitter:   / patient_story  
Tik Tok:   / patientstory  

The interview has only been edited for clarity. The interview has only been edited for clarity.

Pelvis Pain led to my RARE, Gynecologic Cancer - Amanda | The Patient Story
   • Pelvis Pain led to my RARE, Gynecolog...