Видео ютуба по тегу Akusociety

Alkaptonuria- A patient experience
Alkaptonuria- A patient experience
Leave No Patient Behind - A Global Black Bone Disease Registry. Campaign Video.
Leave No Patient Behind - A Global Black Bone Disease Registry. Campaign Video.
Ian and Rosie share their story
Ian and Rosie share their story
L'Alcaptonurie (AKU): Un rare récit d'espoir
L'Alcaptonurie (AKU): Un rare récit d'espoir
AKU Society Low Protein Cooking Demonstration
AKU Society Low Protein Cooking Demonstration
AKU The Forgotten Orphan
AKU The Forgotten Orphan
Nick Sireau (AKU Society) talks about how DrugRepurposing changed his children's condition
Nick Sireau (AKU Society) talks about how DrugRepurposing changed his children's condition
Cure Black Bone Disease: Time Is Running Out
Cure Black Bone Disease: Time Is Running Out
Nick Sireau (AKU Society) talks about what REMEDi4ALL is doing to fill the gap in rare diseases
Nick Sireau (AKU Society) talks about what REMEDi4ALL is doing to fill the gap in rare diseases
An Introduction to Alkaptonuria and Nitisinone
An Introduction to Alkaptonuria and Nitisinone
AKU Presentation Video Day 2 Part 2
AKU Presentation Video Day 2 Part 2
The Official Opening of the Robert Gregory National Alkaptonuria Centre
The Official Opening of the Robert Gregory National Alkaptonuria Centre
EURORDIS Member Award 2021- AKU Society
EURORDIS Member Award 2021- AKU Society
Using data in rare disease clinical trials with Oliver Timmis, AKU Society
Using data in rare disease clinical trials with Oliver Timmis, AKU Society
Ashoka - Solair Aid - AKU Society
Ashoka - Solair Aid - AKU Society
Why the new campaign?
Why the new campaign?
About Black Bone Disease
About Black Bone Disease