it's that time of year again! EDS & HSD awareness month comes around quick! Unfortunately living with this condition has meant I'm getting this video out much later than planned but awareness should be all year round right? So I'm back for my 6th annual series of Ehlers Danlos Syndrome & Hypermobility Spectrum Disorder Awareness Month videos with my dazzle of zebras from across the world. This year we have zebras from different countries sharing their experiences of what it's like to live with these rarely understood conditions on a daily basis.
This is the first video in the 2022 series and we are talking about what EDS and HSD are and what is it really like to live with these conditions on a daily basis from symptoms which impact our bodies and the aspects with impact our whole lives.
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Huge Thanks to Everyone who was involved in this video:
Alexis, Alberta, Canada, 21 , hEDS, She/They, IG: @therarewanderer IG & TW: @ggalexis12 Blog: https://therarewanderer.travel.blog/
Amy, Yorkshire, UK, 23, hEDS, She/her, IG: @voldycat7 YT: / @voldycat
Audrey, Washington, USA, 22, IG: @chronically_revived
Bradley, Victoria, Australia, 30, vEDS, he/him, IG: @veds_zebra
Caroline, Essex, UK, 36, hEDS, she/her, IG: @lilcaz10
Charlotte, West Sussex, UK, 24, hEDS, she/her. IG: @charlotteamylouise
Eloise, Hampshire, UK, 23, hEDS, she/her, IG: @eloisecrowson
Jade, Washington, USA, 17, she/they, Awaiting diagnosis, IG @the_service_squad_
Jenni, Essex, UK, 25, hEDS, She/her, @chronicallyjenni
Jill, The Netherlands, 27, hEDS, she/her IG: @jillhubersmooren @leesdromen (eds focused sccount)
Jo, Lincolnshire, UK, 22, hEDS (possible cEDS) , she/they, IG & TT: @stripesandsunflowers_ TW: @jocopson_
Joey, Melbourne, Australia, 24, hEDS, he/him, IG: @mindful_joey
Lizzie, Sheffield, UK, 32, HSD, She/They, @slaywithsparkle
Maya, Somerset, UK, 27, hEDS, she/her, IG: @lovingchronicme TW: @mimogen22
Rebecca, Brighton, UK, 30, HSD, she/her, IG: @superpadg
Robin , Vancover, Canada, 30, hEDS, she/they IG: @robinhahnsopran YT: / @robinhahnsopran
Rosie, Pennsylvania, USA, 18, hEDS, she/her, TT: @heyitsrose_18 YT: @Heyitsrose18
Simon, Devon, UK, 42, hEDS & cEDS, He/him, IG: @the_bodyboarding_eds_pilot
Sol, Mexico City, Mexico, 29, hEDS, She/her, IG:@solprni @ehlersdanlos.mx
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