Inclusion, Support, and Education in Clinical Research

Join us for our July ALS Learning Series where we will share information about work being done in the areas of inclusion and education in relation to ALS Clinical Research. We will highlight the Northeast ALS Consortium (NEALS) Clinical Research Learning Institute (CRLI) Research Ambassador Program, Community Education Webinars hosted by NEALS, and educational resources focused on aspects of clinical research and Expanded Access created by the Sean M. Healey and AMG Center for ALS at Mass General Hospital (MGH). Information will be shared by Allison Bulat, Strategic Advisor – Community Engagement for NEALS and MGH, and Judi Carey, Research Access Nurse at MGH.
Timestamps:
0:00- 7:54 Introduction
7:55- 9:39 Pillars of ALS Care
9:40 -13:54 What is clinical research and why is it so important?
13:55- 19:15 What are the phases of clinical trials and what happens in each phase?
19:16- 29:20 What resources are available to learn more about current clinical research?
29:21- 39:37 All about NEALS
39:38 - 41:53 All about the International Alliance of ALS/MND associations
41:54 - 43:15 All about ALS Office Hours
43:16 - 44:40 All about After ALS
44:41 - 46:00 All about Veterans Action Group
46:01 -46:56 All about End the legacy
46:57 -47:43 All about ALS Clinical Trials Facebook page
47:44 - 50:29 All about ALS untangled
50:30 -52:37 Takeaways
52:38- 1:05:15 Q & A