Developing Tools to help people living with ALS make difficult decisions

People living with ALS must make many complex decisions regarding their future care needs, which can be stressful and overwhelming. In our upcoming ALS Learning Series, with Dr. Anne Hogden, she’ll discuss how she and other researchers have collaborated with the ALS community, their family members, and their ALS care teams to develop tools that support people living with ALS to make informed choices for their care and quality of life.

Timestamps:
0:00 -3:42 Introduction to the Les Turner ALS Foundation
3:43-7:56 Introduction to the presentation
7:57- 9:52 Who funds ALS care research?
9:53- 12:12 What does multidisciplinary ALS care look like?
12:13 -17:17 What are persistent disruptions to (Australian) equitable care?
17:18 -18:16 Clinical decision making for ALS Care
18:17- 20:07 Patient centered decision making
20:08 -21:54 Why do we need decision support tools?
21:55 -26:02 Why is making choices for ALS care so difficult?
26:03 -29:22 What influences these decisions?
29:23 -38:58 Decision support tools for ALS
38:59- 56:04 Thank you! Q&A