Maddie's Life with Pfeiffer Syndrome

Maddie Blitvich is a bright, and lively seven-year-old who lives with Pfeiffer Syndrome 2, a rare genetic condition. The condition severely impacts the shape of Maddie’s head, and she’s undergone many surgeries on her skull. Pfeiffer Syndrome 2 also means she has speech and hearing issues. Her mother Rachael is a solo parent, totally dedicated to her daughter, trying her best to give Maddie as normal a childhood as possible. Maddie has recently started at a very supportive school. While she struggles with her physical limitations due to difficulties with her balance, she loves to play like any other kid. Maddie is desperate to try out riding a bike. Her fragile skull means she can’t risk riding without proper head protection. However, Rachael’s been unable to find a bike helmet on the market that fits Maddie’s unusually shaped head. Now a design lab at Auckland University has offered to help. The lab will try making a custom helmet for Maddie using sophisticated 3D mapping and printing technology. Could this be the solution to get Maddie out wheeling?

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