C9orf72 Research Education Webinar 2024 - With Subtitles in French and Spanish

Описание к видео C9orf72 Research Education Webinar 2024 - With Subtitles in French and Spanish

Around 140,000 or more healthy people in the United States have C9orf72 repeat expansions, a few thousand more with a current ALS or FTD diagnosis - what research is available for them to participate in? It can be hard to understand what research participation is available. It can be even harder to picture what participating in research is like! Hear from experts about what research is available and from everyday people with the mutation about what participating looks like for them.

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